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A short CFS documentary

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Author: DiamonDie
Description: A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds. I have written a book about CFS/ME/FM treatments titled "Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia". It features over 250 medications that can be used to treat these illnesses. For more information see http://www.brokenmarionettebook.com
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i agree with you! i havn't ever got as bad with my m.e to be bed ridden but on a bad day sometime i don't have the energy to talk for that long and when i do i sound drunk cause of brain fog!! haha

I hear that! lazy bitch!

what about talking -crusts! i am sorry i had ME really bad ad you dont worry and obsess like that you are wiped out with a constant flu like illness!

i think youre right about thats actually.she has alot of energy for a ME person. when i was bedridden with the illness i wasnt talking like her -she could run a talk show.

Wtf, thats just being fucking lazy.

Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!

May I ask if you are a nurse or Dr? I also have CFS and they have tested my thyroid and everything else. My tests are all normal. But I have these awful symptoms. How do you know she is "severly hypothyroid"? The puffy face is just her wieght. She doesn't move or exercise because of CFS so ofcoarse her face is puffy. She's a little heavy. If you have some helpful medical advice to offer, please do. I and other people with this are suffering. But it's not thyroid.

She is severly hypothyroid. Migranes, thin hair, puffy face. Get her some T3 for Gods sake

Beachbayu, are you a Neurologist? are you a "visionaire"? or are just some scumbag that hates people because of your lousy life. Youn Anarch

I bet a million bux in the bank would cure this shyte fast.

Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent, (no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER, For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!

cfs yea right.. fucking asshole ... your just fucking lazy!

cfs yea right.. fucking asshole ... your just fucking lazy!

I have been back and fore hospitals trying new treatments ever since it first started, altered everything in my life right down to what i have my clothes washed in, upto now nothing has worked, but that won't stop me being first in the que next time they find something worth trying. I really hope it works for your girlfriend but i have heard and tryed many if these "cures" over the years,But if it don't work you just have to keep going. If it do work please post more about the treatment.thanks

I am 27 and since i have been 11 years old i have had cfs. I was enable to attened secondry school, and was home schooled but the illness became quite bad, quite quick. Now at 27, the illness has stoped me doing thing i would have liked to do, because i know have CFS, fibromyalgia, PCOS, IBS, GERD, meiners disease and neuralgia. So my life is very different to what it could have been, but i still do have a good life, I have a wounderfull family, good doctor and most of the time good outlook.

all i want to say to you is that there is hope though...

i totaly agree with you, cfs/me has different causes. but why is everybody thinking there is no cure? even when there is one guy out there who got cured somehow, it profs that there is a cure for cfs/me. and i dont think you have ever met a doctor who said you cant be cured... there are no longtime studies about cfs/me. the longest studie ive heard from was about 5 jears. doctors and sientists started searching just about few jears ago. no one can say what cfs/me 100% is.

I just want to say something to the people who've said ME/CFS can be cured: 1) There is no definite cure for ME/CFS (the comment about functional gut disease, & being cured once you heal your guts, that might work for you, don't assume about other people though) 2) Everybody's experience with ME/CFS is different, including what things do & don't work for each person, & how long they are sick with it. There are some treatments, but there's no guarantee that they work for everyone with ME/CFS.

there is a cure for cfs anyway... i served cfs for 5 jears and im "cured" now its just ignorant to say that there is no cure. but its no surprise that everybody says so, doctors dont say that there is no cure. only people like that girl are the reason why everybody thinks so... many people with cfs/me have a funcional gut diseas, what means all the toxins and bacteria can leave the guts and make truble all around the body. when you heal your guts you can be cured.

Hi, I recovered from CFS and am now writing a book about my experience. The book also includes the know-how of how to heal yourself. E-mail me to receive a copy. The process took me 3 years, but could have been much faster.

She doesn't talk about it much as it was a bad time for her but she has said that you should have faith in your docotor, go to a spiecalist. She said the rest, activity thing really worked for her. Don't push yourslef furthur than you can do.

Any information that she can give us..?

My friend had servere M.E and recovered within 3 years. It was amazing, inspiration to me

would be really nice to hear from someone who has recovered from M.E would love to know how long the recovery took, if it was slow or instant. Just to give us some faith that they can get better, without relapse!

Does anyone know how this girl is? Let us know!

Tags: bedbound bedridden cfs chronic disability documentary encephalomyelitis fatigue illness me myalgic syndrome

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