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Who am I? Lyme Disease?

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Author: MyLymesStruggle
Description: Just an update on my condition with lyme.
Views: 651
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mclovinowns121, If you watch some of the lyme videos and read the comments, you will see that it CAN be more serious than you want to know, but it doesn't NEED to be...treat it properly early on, and you will be okay. In other words, your mom needs to make sure that you are seen by a lyme-literate medical doctor ASAP. For real, make sure it happens. Your mom is free to e-mail me too.

It was great to hear from you Jamie! That's the attitude! I know how tough it can be. I have a wife and 2 kids with Lyme and still our patience with eachother is stressed and the Lyme emotional effects just aggrevates it. This kind of new friend support is so important. I hope you feel you can connect back with me whenever you need it. I'm in one of the epicenters in Westchester, NY so I'm not alone and neither are you. I need to get a camera and follow your brave example. You're great, be well!

Hi Jenn, Wow, it sounds like we have alot in common. I really wish you the very best. I am just beginning treatment for real this time. It has been a long road but I super positive and keep a good outlook. Take care.Jamie:)

Thanks Dave for your thoughts. I am going to win this fight. I am not a quitter. I hope you are feeling better too. Jamie:)

Hi D, Well, it sounds like you caught it early which is a really good sign. Make sure you do abx for a little longer than that. I am very serious. Your mom can e-mail me if she wants. I just know that most LLMDs would want you to do a little longer just in case. Don't want to take any risks. Good for you for advocating for your health at such a young age. Take care and I am sure you will bounce right back. The younger you are they say it is easier to recover. Jamie:)

hey im only 12 years old and i just tested positive for lyme disease :( but for me it only took one blood test at the doctors and acording to my mom i will be on anti biotics for 3 weeks and its nothing serious but i think my mom is trying not to scare me cuz i worry about health. My symtoms were mainly just contanst head aches and problems memorizing facts and the one day of soarness. so is it serious or just and easy cure? i also wish you the best of luck on getting better =D

Hi Jamie, my name is Dave; I've lived with Lyme for 16 years now. I was successful at keeping it in control until 2 years ago when it broke out of control and took me out of my profession and the life I knew. You have a great spirit, the only advice I can give is keep on fighting and make sure your Doctor is really locked into the associations that provide updated protocal which should be shared with you. Hang in there!

Hi Jamie, My name is Carol and I recently found out I have chronic lyme as well. I fell terribly ill back in February (prior to diagnosis). They ran all kinds of test. At one point as it was going thru my body and attacking different parts I got to a point where it felt my lungs were too tired & weak to keep expanding and contracting. I ended up in the hospital. I completely relate to losing who you were. I find the brain/cognative part the worst & scariest. I hope you are feeling better

my name is terra im 21 and i have been fighting lyme for years i wish u the best of luck this is a horrable disease and i wish u nothing but the best

Hey Jamie,my name is Jennifer from NYC,I been sick with lyne since May 2006,I started with an iv picline,and then abx,I havent been off in 2 years.I am a mommy Makayla 8 aand Aiden 3,My mother just passed away June 16,due 2 cancer.She was my voice my rt arm,When every one said i was crazy,she new somthing was so wrong.I have good days and bad days,It gets so hard taking care of the kids and fighting this disease..Anyways just wanted to say HI,hope ur feeling better..JENN

Hi, Thanks, I really feel that I am dealing with Bartonella too. A friend of mine says he really feels that this is the problem too.

Hi Jamie, I am just startingthis whole lyme saga. I have been sick for almost 7 months with no diagnosis. I am now starting antibiotics for lyme. I wanted to thank you for your videos I have really enjoyed watching and learning more about Lyme. I am hoping to get better soon myself. I was wondering where you live,and what doctor you see? I trying to get into see the LLMD. Any advice at all would be greatly appreciated. thanks, Tracey

There will come a day when this will all be behind you and you will be back doing all the things you love to do. I feel like were getting closer and closer to a protocol that will work for any Lymer at any stage of the disease to put it into remission irregardless of how many co-infections one might have. Keep watching and stay tune to the LymeKnights Website and Research. It's all about sharinghealth. com municating openly and truthfully within the Lyme Community!

Heya Jamie! So good to see you again. Wow, for not having a watch you sure did do that clip in 10 minutes to the second! Glad that you are all settled into your new home and that things are going well with your fella. Adversity can often bring out the best part of folks. I am sorry that I have not yet gotten a clip on here. Spent some money on a cheapo camera, and it sucks. You can't hear me talk. I'll try another maybe. Was really down for a bit but I'm picking back up. More to say: talk soon.

just fyi, diflucan is also used by some lyme doctors to treat lyme. and lots of people with lyme also have candida, so it 'kills two birds with one stone,' so to speak.

Im so-so.. Surely better than I was. I did get really a lot better over this past year, but I slid back a bit thru summer :( Burrescanos proticol I guess.. abx and a zillion supplements and herbals.. Im so sick of it tho :( I see a woman Dr too.. In NJ.

Have been wondering how you were, so glad things are going better with your husband, and life is happier, it can only help you to get better. You are so right about horrible things making you stronger i had a terrible year in 2004 and in the end it made me so much stonger and more content with everyday life. You will look back on this one day proud with how you coped. xx

I know I got lucky. Not necessarily every drug is covered but quite a few. Are you better? What is your protocol?

I noticed that you said you were put on Diflucan and had strong herx's from that. Do you have a problem with candida albicans too? I mean no disrespect, Have you actually tested positive for lyme? I've had no positive lyme tests after five tries, but I did test positive for Candida.

Its so hard.. I know it. I think its the worst disease in the world. But it will get better after awhile. Takes forever and its a slow thing.. You have a Dr who takes your insurance? Wow.. Thats like the majority of the battle!

Thanks for watching. I will get this heart pounding thing resolved real soon. A year into and I am done. Ready to bring in the big guns. :)

Thanks for watching. I know it helps me so much when I talk to people with lyme. How are you doing with your treatment? It is hard but don't back down. Just remember when you start thinking of quitting cuz it gets hard, the bugs want you to quit. Jamie:)

Yes, I use it on gallbladder area. I use it more for detox. I don't really notice anything helps pain except a pain killer or making sure I take my Medibulk. Take care

Question? Are you using the castor oil for your gallbladder pain or to aid with detox in general? I've got a bottle of that stuff here at home and can't decide which area to place the castor oil pack on now.

Thanks so much for this wonderful video. I have been worried about you. Happy to hear that things are better in your new place. It's just so helpful hearing from others about their symptoms, treatment protocols, what supplements work for them, etc. I've been in treatment for 7 months. And I could relate to everything you shared. I'm treating for Lyme/Babs/Bart/Mycoplasma/and Ehrlichia. I'm looking forward to more videos from you soon. It's reassuring to see and hear from other Lymies.

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